Foreningen for von Hippel-Lindau Patienter

The Association of VHL Patients and their Relatives aims to support those effected by the disease. We take part in national and international work with doctors and scientists.

The purpose of this web site is to give both background and specialised information to those who need to understand what it means to have VHL.

What the scientific community knows about VHL is constantly changing, therfore it is important that all VHL patients consult their doctors on a regular basis.